Help yourself. Help others.
Dealing with serious health issues, we all have needs. We all have knowledge to share.
Let’s do that.
Frum Health was founded for people in our community who deal with long-term, serious, medical issues, looking to network with others that have similar challenges. To help share knowledge, information, or just give each other encouragement.
Because together, we are stronger.
Learn
Learning is critical to healing – and we are committed to helping people get there. There is information a group might know that NO ONE else will. Where to daven, how to travel, best schedules, what medications. The list goes on and on.
Encourage
Anyone with long term medical challenges can use encouragement. Just being there for others, listening and understanding, can make such a difference. You can encourage others. Others can encourage you.
Help
People in crisis need help. Sometimes you can help, sometimes you need help. Whether it is getting food, finding a ride, running an errand, or just help finding a babysitter. Everyone has something they need or can offer.
FAQ
General Information
What is Frum Health?
Frum Health is an organization dedicated to helping individuals who have or care for someone with serious health conditions, discover and network with others that have the same condition. We have found this to be an excellent way to find information, support, and get help.
What do you offer?
Currently, Frum Health consists of this website, and our FrumHealth Slack channel. In the future we hope to add additional informational services like a wiki or a knowledgebase.
How will this differ from a referral agency?
A referral agency is great for finding specific doctors or procedures. People who have been through medical difficulty learn will have a lot of other information. How to travel, where to stay, what equipment to use, which medications work well…. on and on. This is not information that is easily accessible. A forum of experienced people sharing information is therefore very powerful.
General Slack Questions
What is Slack?
Slack is a communication tool. Basically a fancy chat app. It is mostly accessed through an app you download from an app store. You can also use it in a web browser if you don’t have a smartphone.
Why Slack? Why not Whatsapp or something else?
One of Slacks great advantages is the ability to break groups into different chat groups. They call these “channels”. We decided this would be ideal for a health group where people would want to speak to ONLY people that have similar struggles but still be a part of a larger group.
What Channels are currently available?
Channels evolve based on need but we currently have the following Channels:
- Arthrogryposis
- Asthma
- Autism Spectrum Disorders
- Cancer
- Celiac Disease
- Cerebral Palsy – Infantile Hemiplegia
- Chromosomal Deletion
- Craniofacial Disorders
- Cystic Fibrosis
- Developmental Delay
- Diabetes
- Down Syndrome
- Familial Dysautonomia
- Fragile X
- Gastroenterology
- Hearing Impairments
- Heart Issues
- Hydrocephalus
- Kidney Disease
- Liver Disorders
- Lyme Disease
- Micro-Preemies
- Muscular Dystrophy
- PANDAS
- Seizure Disorders
- Spina Bifida – Tethered Chord
- Stroke
- Vision Impairments
Privacy Questions
Do I need to use my real name and email?
Nope. You can choose any alias that works for you.
Who will be able to see my information?
Profile: Everyone in the entire Frum Health Channel will see only your name. You can use any name or change it at any time.
Postings: If you post in channels it can be seen by everyone who is in that channel.
Private Messages: (DMs) can only be seen by the recipient.
Signup Process & Rules
How do I signup for the Slack channel?
1. Click the signup button on our homepage.
2. Sign up with your email address.
3. Once signed in you can choose from our channel list.
What if a channel I need isn’t listed?
Once signed up you can request a new channel by reaching out to the admins.